Eszter Hars, Ph.D., President and CEO, SDS Alliance5 days agoSDS Science SnapshotsSDS & Science Snapshots (2024-04-20)In this issue: SDS Alliance highlights the patient voice at the international INNOCHRON meeting in Greece! Welcome to our timely updates...
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAApr 13SDS Science SnapshotsSDS & Science Snapshots (2024-04-13)In this issue: New research opportunity for siblings to individuals with SDS!
Eszter Hars, Ph.D., President and CEO, SDS AllianceApr 6SDS Science SnapshotsSDS & Science Snapshots (2024-04-06)In this issue: What are experts saying about the importance of genetic testing in individuals with bone marrow failure?
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAMar 30SDS Science SnapshotsSDS & Science Snapshots (2024-03-30)In this issue: How are advances in genetic testing technology changing newborn screening and the course of the diagnostic odyssey?