<![CDATA[Shwachman-Diamond Syndrome Alliance Inc]]>https://www.sdsalliance.org/blogRSS for NodeSun, 18 May 2025 12:50:24 GMT<![CDATA[SDS Patient LENS Study Now Open]]>https://www.sdsalliance.org/post/_lens679e1b7fce173527580bd175Sat, 01 Feb 2025 15:30:03 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[Register for Community Webinar and Q&A to prep for SDS PFDD Meeting]]>https://www.sdsalliance.org/post/sds-pfdd-intro678bcbf50f2a72cbfa990d2dSat, 18 Jan 2025 15:30:03 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[Amazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025]]>https://www.sdsalliance.org/post/sds-pfdd677984f259e2380319060d2dTue, 07 Jan 2025 15:30:03 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[SDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08]]>https://www.sdsalliance.org/post/sds-pops-20246755cb0ab2f85d7142a03b9aSun, 08 Dec 2024 15:30:03 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[Insights from the ESH Translational Research for IBMF Conference and the French Neutropenia Registry Day. SDS & Science Snapshots (2024-11-23)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-11-09-167430d1a4994cdd8f79d5283Sun, 24 Nov 2024 15:30:03 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[SDS & Science Snapshots (2024-11-16)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-11-1667339a8e31756b3948dc05a2Sat, 16 Nov 2024 15:30:10 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS and Diabetes: SDS & Science Snapshots (2024-11-09)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-11-09672e8978c5b10d5e5bc6a973Sat, 09 Nov 2024 15:30:03 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-11-02)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-11-0267252e7f92ddb1d7ab7fae96Sun, 03 Nov 2024 15:00:16 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[Announcing the Winners of the 2024 Million Steps Closer to #CureSDS Challenge ]]>https://www.sdsalliance.org/post/million-steps-curesds-2024672a740b6c6a0dc059f356b1Sun, 03 Nov 2024 02:26:04 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[Celebrating Inaugural Global SDS Awareness Day and Action Week: November 1-7]]>https://www.sdsalliance.org/post/sds-awareness-shwachman-diamond-syndrome6726d23d036590cae37663d3Sun, 03 Nov 2024 02:26:04 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[SDS Alliance shares ideas at new FDA Rare Disease Innovation Hub kick-off Meeting. SDS & Science Snapshots (2024-10-26)]]>https://www.sdsalliance.org/post/sds-alliance-fda-rare-disease-innovation-hub671dc6e96cf7bc1f5df30ebdSat, 12 Oct 2024 14:30:10 GMTEszter Hars, Ph.D., President and CEO, SDS Alliance<![CDATA[SDS & Science Snapshots (2024-10-12)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-10-1267097d0ed1657281f363c126Sat, 12 Oct 2024 14:30:10 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-10-05)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-10-05670049e369cb46feb88bde49Sat, 05 Oct 2024 14:30:03 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-09-28)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-09-2866f71cb8c8a1c6e4a23edf81Sat, 28 Sep 2024 14:30:06 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-09-07)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-09-0766db145f1a29b9c0654a49bdSat, 14 Sep 2024 14:30:12 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-08-25)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-08-2566d4830e7e28c8e2b4189089Sun, 01 Sep 2024 15:07:28 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[New Publication by the SDS Alliance Highlights SDS as a Therapeutic Target. SDS & Science Snapshots (2024-08-17)]]>https://www.sdsalliance.org/post/cpt2466bfb87de70c57c3f8cc9f2cSat, 17 Aug 2024 15:30:11 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-08-03)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-08-0366aa83e19e1ef9411a0a109dSun, 04 Aug 2024 14:30:18 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[SDS & Science Snapshots (2024-07-20)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-07-20669aca8c00717c707c3869abSat, 20 Jul 2024 14:30:15 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA<![CDATA[Free Genomic Sequencing for SDS through New Collaboration with Rare Genomes Project. SDS & Science Snapshots (2024-07-13)]]>https://www.sdsalliance.org/post/sds-science-snapshots-2024-07-136691a27286ff578855282320Sat, 13 Jul 2024 14:30:06 GMTAshley Thompson, MS, CGC, Genetics Project Manager @ SDSA