Science Lab

100% of Your Donation 

Goes to SDS Research.

We want to maximize the impact of your donation on developing a cure for SDS. Your donation will be used exclusively for SDS research. Our management team is not taking any salary and our operating expenses are covered by a separate account, supported by generous donors whom we privately approach.

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SDS & Rare Disease: short video overview.
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Upcoming Events

  • NEW DATE (virtual) June 2021! 10th International Congress on Shwachman-Diamond Syndrome
    Cambridge, UK
    Jun 12, 6:00 AM – Jun 15, 12:00 PM
    Cambridge, UK, Cambridge, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed to 2021, and changed to a virtual format.

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:


Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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