Mission & Vision

Our Vision:

To cure SDS


To Cure SDS means that all SDS patients will have access to effective treatments to prevent or treat all SDS complications, including leukemia and organ failure, to enable a long and healthy life.

Our Mission: 

To accelerate research and translation into therapies and cures; to deactivate the SDS ticking time bomb.
  • build a research-ready global patient COMMUNITY through education, connection, and a global platform to capture patient input

  • develop a RESEARCH ROAD MAP and jump-start key projects and collaborations

  • provide researchers access to critical RESEARCH TOOLS (cell lines, animal models, data, etc)

  • expand patient access to DIAGNOSTICS and expert MEDICAL CARE

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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