Mission & Vision

Our Vision

Stop SDS

 

A world in which all SDS patients have access to effective treatments to prevent or treat all SDS complications, including leukemia and organ failure.

Our Mission

Drive patient-centered SDS research through global collaborations
  • collect patient insights and amplify patient voices though patient centered outcomes research

  • build a research-ready global patient community

  • expand access to diagnostics and expert medical care though education and collaboration

  • drive global research collaborations

  • provide researchers access to anonymous patient data and research tools (such as cell lines, antibodies, model organisms, genomic data)

  • raise funding to jump start new research projects and support the most promising ones

We believe all women can embrace who they are,
can define their future, and can change the world.

Our Vision

Stop SDS

 

A world in which all SDS patients have access to effective treatments to prevent or treat all SDS complications, including leukemia and organ failure.

 

Our Vision

End SDS. Enable the cure of SDS.

We Need Your Support Today!

Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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