Mission & Vision
To cure SDS
To Cure SDS means that all SDS patients will have access to effective treatments to prevent or treat all SDS complications, including leukemia and organ failure, to enable a long and healthy life.
To accelerate research and translation into therapies and cures; to deactivate the SDS ticking time bomb.
build a research-ready global patient COMMUNITY through education, connection, and a global platform to capture patient input
develop a RESEARCH ROAD MAP and jump-start key projects and collaborations
provide researchers access to critical RESEARCH TOOLS (cell lines, animal models, data, etc)
expand patient access to DIAGNOSTICS and expert MEDICAL CARE