Science Lab
Science Lab

A Cure for SDS

Imagine a world where SDS could just go away, life could be back to normal, and we could live without the fear that another shoe is going to drop…

Why isn't it available?

Developing a therapy is a complicated process. The current system that funds medical research does not work well for rare diseases, but there are success stories.

Science Lab

Together, we can make it happen!

Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research.  Our mission is to replicate the success for SDS.  Will you join us?

100% of your donation 

goes to SDS research.

Your donation will be used exclusively for SDS research.  Our management team is not taking any salary; all operating costs are covered by a separate account, supported by donors whom we approach privately.

SDS and
Rare Disease

Latest SDS News and Stories

Upcoming Events

  • NEW DATE (virtual) June 2021! 10th International Congress on Shwachman-Diamond Syndrome
    Cambridge, UK
    Jun 12, 6:00 AM – Jun 15, 12:00 PM
    Cambridge, UK, Cambridge, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed to 2021, and changed to a virtual format.
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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:


Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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