SickKids 8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference

8th National Marrow Failure & Myelodysplasia (MFM) Patient and Family Virtual Conference 

April 13, 2024

1:00 p.m.-6:00 p.m.ET

Viewing in Eastern Time

Register and find all details at https://web.cvent.com/event/1b80f758-9080-4cb8-8cdf-d4f72889e4b1/summary

We are pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field. This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.

Highlighted Topics

• Development of preleukemia, leukemia, and solid tumors in adults & children with bone marrow failure

• Raising awareness of new research to understand the diseases and develop new treatments in Canada and abroad

• Overview of new developments related to the conditions and their treatments

• Information about Canadian treatment centres and support groups

The conference is FREE!

You can attend and watch the sessions from home.

Examples of bone marrow failure and myelodysplastic disorders relevant to the conference:

• Aplastic anemia

• Fanconi anemia

• Shwachman-Diamond syndrome

• Dyskeratosis congenita

• Congenital amegakaryocytic thrombocytopenia

• Diamond Blackfan anemia

• Myelokathexis

• Familial thrombocytopenia with predisposition to leukemia

• GATA2-related disorders

• Sideroblastic anemia

• Congenital neutropenia (e.g.Kostmann neutropenia)

• Cyclic neutropenia

• Glycogen storage disease type Ib

• Barth’s syndrome

• Thrombocytopenia with absent radii

• Familial or hereditary thrombocytopenia

• Myelodysplastic syndrome (familial MDS/leukemia, de novo MDS,therapy-related MDS)

• Other bone marrow failure syndromes