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SDS PFDD Meeting

Externally-Led Patient-Focused Drug Development Program (EL-PFDD) meeting for Shwachman-Diamond Syndrome. June 4th, 2025. Cinicnnatti, OH and Virtual via Zoom.

Visit the SDS PFDD Info Page

Catch up on the summary and video recording
of SDS POPS 2024, our global virtual patient advocacy and partnering summit.

SDS POPS Recording & Resources

person looking at a laptop screen to access SDS-POPS Shwachman-Diamond Syndrome Patient Advocacy and Collaboration Platform

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Featured News on News and Events

Nouvelles de l'Alliance

SDS & Science Snapshots

L’alliance SDS lance un projet de modèle de souris avec le laboratoire Jackson.

L’alliance SDS lance un projet de modèle de souris avec le laboratoire Jackson.

SDS Alliance has just launched a project with The Jackson Laboratory to develop an SDS mouse model—the key first step toward a cure for SDS.

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