Virtual and local patient & family support options
We have launched a private Facebook group for SDS families and their close supporters, who are interested in honest, mindful, and proactive discussions about SDS, the latest research, and opportunities to get involved and make a difference, called the ACTION TEAM Facebook group. Please join if you would like to get involved.
Are you looking for local support and connections with patients near you? Reach out to us, and we will help you get connected! You can also find registered patient support organizations, Facebook Support Groups, and Patient Ambassadors listed by country (sorted A > Z), in the table below.
Don't see your country represented? Contact us!
We can help you set up a group and even host a simple info page for you.