Virtual and local patient & family support options
There is also a very active global Facebook group specifically for patients and their direct caregivers for the global community, and not affiliated with any particular support organization.
Are you looking for local support and connections with patients near you? Reach out to your local SDS patient support group. You can find your nearest organization by country (sorted Z > A), in the table below.
Don't see your country represented? Contact us!
We can help you set up a group and even host a simple info page for you.
The foundation was established in 1998 to bringing families in their midst with someone with the rare Shwachman Diamond Syndrome; to represent the interests of people with Shwachman Diamond Syndrome and their families; maintaining contacts with international support groups; and collecting and disseminating information and providing information.
Shwachman-Diamond Canada is a registered Canadian charity (Registered Charity #86880-8197 RR001) dedicated to raising and awarding funds for much needed research, disseminationd information and improving the quality of life for children and adults with SDS and their families.