Virtual and local patient & family support options
NEW: Online support group for SDS patients and their close family, with a little bit science update sprinkled in.
Click here for more info and to register.
There is also a very active global Facebook group specifically for patients and their direct caregivers for the global community, and not affiliated with any particular support organization.
Are you looking for local support and connections with patients near you? Reach out to your local SDS patient support group. You can find your nearest organization by country (sorted Z > A), in the table below.
Don't see your country represented? Contact us!
We can help you set up a group and even host a simple info page for you.