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In this section, we bring you exclusive SDS Alliance insights, SDS related news, science highlights, and event announcements from around the globe.

Shwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and Therapies

Shwachman-Diamond Syndrome receives new ICD-10 Diagnostic Code, Paving the Way For Improved Patient Care and New Treatment Options. Code...

SDS Cell Biobank Pilot Project a success!

After the successful launch of the mouse model project last year and advancing it to phase two this year, we have expanded our efforts to...

SDS Alliance Meets with the FDA

Dr. Eszter Hars (SDS Alliance president and CEO) joined the FDA CBER OTAT Patient-Focused Drug Development Listening Meeting.

SDS Alliance meets with the White House Cancer Moonshot Team

September 30th is Rare Cancer Day. We marked the day by taking action and meeting with the White House Cancer Moonshot initiative in...