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SDS Events - Global
Ocak 2025
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15:00
Global SDS Family Coffee Chat
+ 1 tane daha
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Community Webinar/Q&A about the SDS PFDD meeting planned for this summer
+ 1 tane daha
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Upcoming and Past Events
Birden Fazla Tarih09 Şub PazVirtual event09 Şub 2025 15:00 – 17:00Virtual eventMonthly virtual get-together to build community and support.
23 Oca PerZoom23 Oca 2025 16:00 – 17:00Zoom
20 Eki Pazhttps://www.sdsalliance.org/sds-pops20 Eki 2024 13:00 – 17:00https://www.sdsalliance.org/sds-popsThe only global, virtual meeting of its kind to provide patients, caregivers, scientists, physicians, and all other stakeholders with an opportunity to connect and discuss all things related to Shwachman-Diamond Syndrome research and advocacy.
19 May PazVirtual. Register at sdsalliance.org/cce19 May 2024 14:00 – 15:00 GMT-4Virtual. Register at sdsalliance.org/cce
13 Nis Cmtfree virtual event13 Nis 2024 13:00 – 19:00 GMT-4free virtual eventThis meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and adult patients are welcome.
20 May CmtVirtual event20 May 2023 10:00 – 15:00 GMT-4Virtual eventThe first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
18 Nis SalRobinson College, Cambridge, UK18 Nis 2023 09:00 GMT-4 – 21 Nis 2023 13:00 GMT-4Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
24 Mar CumParis24 Mar 2023 09:00 – 16:00 GMT+1Paris, Paris, FranceNous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
30 Nis CmtVirtual30 Nis 2022 12:00 – 18:00 GMT-4VirtualThe National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
24 Eki CmtVirtual run/walk, location of your choice24 Eki 2020 07:00 GMT-4 – 01 Kas 2020 23:00 GMT-5Virtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
12 Tem PazCamp Sunshine, Cosco, ME, USA12 Tem 2020 14:00 GMT-4 – 16 Tem 2020 10:00 GMT-4Camp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
29 Şub CmtPainting with a Twist, North Andover, MA29 Şub 2020 14:00 – 17:00 GMT-5Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
15 Eyl PazBoston, MA15 Eyl 2019 08:00 – 16:00 GMT-4Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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