Sat, Oct 24 | Virtual run/walk, location of your choice

Fun-Run-Walk October 2020

Registration is Closed

Time & Location

Oct 24, 2020, 7:00 AM EDT – Nov 01, 2020, 11:00 PM EST
Virtual run/walk, location of your choice

About the Event

It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research!

Special event T-shirts available Until October 4th, 2020.

With this fundraising campaign, we are raising funds to accelerate therapy and cure development for Shwachman-Diamond Syndrome, a rare genetic cancer predisposition disorder that affects thousands of children and adults world wide.

Shwachman-Diamond Syndrome Alliance's mission is to accelerate therapy development and a cure for SDS - in particular to eliminate the deadly leukemia risk in SDS - in a time frame that matters to our children and thousands of SDS patients world wide. Our focus is research and development: we raise funds for the most cutting edge research, build collaborations globally, and invest into critical research tools and infrastructure, now.

One million steps is certainly too much for any single person. But together, the steps add up. We can get there!

Questions / Comments?

Details at www.SDSAlliance.org/steps

Contact us at the SDS Alliance: connect@sdsalliance.org or +1-617-329-1838

Registration is Closed
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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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