SDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
News and Events
Featured Event
Join us live this fall at SDS POPS, our global virtual patient advocacy and partnering summit.
SDS and Community News
Featured News
SDS Alliance shares ideas at new FDA Rare Disease Innovation Hub kick-off Meeting. SDS & Science Snapshots (2024-10-26)
New Publication by the SDS Alliance Highlights SDS as a Therapeutic Target. SDS & Science Snapshots (2024-08-17)
Free Genomic Sequencing for SDS through New Collaboration with Rare Genomes Project. SDS & Science Snapshots (2024-07-13)
Shwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and Therapies
SDS Cell Biobank Pilot Project a success!
SDS Alliance Meets with the FDA
SDS Alliance meets with the White House Cancer Moonshot Team
SDS Alliance is Awarded JumpStart Grant for iPSC Development
Mouse Model Project Update: Phase I complete!
Dr. Eszter Hars chosen by The Milken Institute to join FasterCures LeaderLink Program
SDS Alliance Awarded Chan Zuckerberg Initiative “Rare As One” Grant
Elevating Shwachman-Diamond Syndrome's Standing
Bringing Shwachman-Diamond Syndrome to the Forefront
Mouse Model Project: Meet the Scientists!
Advocating for SDS Research at Rare Drug Development Symposium
The SDS Alliance Launches Mouse Model Project with The Jackson Laboratory
A Cure for SDS: Our Mission