Finances

Finances

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community. Our EIN and IRS determination letter is available, here.
100% of your donations goes toward accelerating therapy development.
 

Our leadership team is not taking any salary or compensation so that your donation will make the maximum impact.

The remaining overhead is covered by private donors who choose to fund our operations. And because we treat the programs and operations sides of our business differently — separate purposes, fundraising goals, and accounts — we can guarantee that every single penny received of a public donation goes towards accelerating SDS therapy development.

All financial reports will be posted publicly, as soon as they are available. In the meantime, please email us at connect@SDSAlliance.org with any questions. Our goal it to practice maximum transparency while respecting the privacy of any donors who wish to remain anonymous.

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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