Shwachman-Diamond Syndrome Alliance is a US based nonprofit 501(3)c corporation, serving the global SDS community. Our EIN and IRS determination letter is available, here.
100% of your donation goes toward accelerating therapy development.

Our leadership team is not taking any salary or compensation so that your donation will make the maximum impact.

The remaining overhead is covered by private donors who choose to fund our operations. And because we treat the programs and operations sides of our business differently — separate purposes, fundraising goals, and accounts — we can guarantee that every single penny received of a public donation goes towards accelerating SDS therapy development.

All financial reports will be posted publicly, as soon as they are available. In the meantime, please email us at with any questions. Our goal it to practice maximum transparency while respecting the privacy of any donors who wish to remain anonymous.