Welcome to the Family

You are not alone!

This section of our website offers you - patients and their families - resources and support.

We are currently working on a comprehensive new patient guidebook, compiling information materials and brochures, and more tools for you to get empowered: become an SDS expert, raise awareness, contribute your insights and experience, and more. 

Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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