Eszter Hars, PhD5 days agoSDS SpotlightOne Year Later: The SDS PFDD Voice of the Patient Report Is Published — and Your Voice Is Already at Work
Eszter Hars, PhDMay 30SDS Alliance NewsHow to Fundraise for Shwachman-Diamond Syndrome Research: A Free Guide for Families and Supporters
Eszter Hars, PhDMay 7SDS SpotlightSDS Alliance Receives Grant from RTW Foundation to Advance Prime Editing Gene Therapy for Shwachman-Diamond Syndrome
Eszter Hars, PhDApr 28SDS Alliance NewsYour Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS
Eszter Hars, PhDApr 2SDS SpotlightLiving with Shwachman-Diamond Syndrome: What Lab Tests Can't Tell Us
Eszter Hars, PhDMar 5SDS Learning ResourcesProject PACER: Building Shwachman-Diamond Syndrome Education Together
Eszter Hars, PhDJan 9SDS Alliance News2025 Impact Report: How the SDS Community Is Advancing Research Toward Therapies
Eszter Hars, PhDNov 8, 2025SDS Alliance NewsIntroducing Monthly Giving Allies: How Small Monthly Gifts Help Accelerate SDS Research and #CureSDS
SDS Community MemberNov 3, 2025SDS Patient Stories and NewsOctavian's SDS Story 2: A Rare Gem with EFL1, Year Two
SDS Alliance TeamNov 3, 2025SDS Learning ResourcesUnderstanding Your Genetic Testing Report: Key Elements for the Shwachman-Diamond Syndrome (SDS) Community and Why it Matters
Eszter Hars, PhDJul 27, 2025SDS Alliance NewsSDS Alliance awarded PCORI Engagement Award funding to build capacity for patient-centered CER for Shwachman-Diamond Syndrome.
Eszter Hars, PhDJul 16, 2025SDS Alliance NewsFDA provides positive feedback on the SDS EL-PFDD meeting, valuing the Patient Voice
Eszter Hars, PhDJun 23, 2025SDS Alliance NewsReflections from Cincinnati 2025 and impact of the patient voice
Eszter Hars, PhDJan 18, 2025SDS Alliance NewsRegister for Community Webinar and Q&A to prep for SDS PFDD Meeting
Eszter Hars, PhDJan 7, 2025SDS Learning ResourcesAmazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
Eszter Hars, PhDDec 8, 2024SDS Learning ResourcesSDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
Eszter Hars, PhDNov 24, 2024SDS Learning ResourcesInsights from the ESH Translational Research for IBMF Conference and the French Neutropenia Registry Day. SDS & Science Snapshots (2024-11-23)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 16, 2024SDS Learning ResourcesSDS & Science Snapshots (2024-11-16)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 9, 2024SDS Learning ResourcesSDS and Diabetes: SDS & Science Snapshots (2024-11-09)
