Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 8SDS Alliance NewsIntroducing Monthly Giving Allies: How Small Monthly Gifts Help Accelerate SDS Research and #CureSDS
SDS Community MemberNov 3SDS Patient Stories and NewsOctavian's SDS Story 2: A Rare Gem with EFL1, Year Two
SDS Alliance TeamNov 3SDS Learning ResourcesUnderstanding Your Genetic Testing Report: Key Elements for the Shwachman-Diamond Syndrome (SDS) Community and Why it Matters
Eszter Hars, Ph.D., President and CEO, SDS AllianceJul 27SDS Alliance NewsSDS Alliance awarded PCORI Engagement Award funding to build capacity for patient-centered CER for Shwachman-Diamond Syndrome.
Eszter Hars, Ph.D., President and CEO, SDS AllianceJul 16SDS Alliance NewsFDA provides positive feedback on the SDS EL-PFDD meeting, valuing the Patient Voice
Eszter Hars, Ph.D., President and CEO, SDS AllianceJun 23SDS Alliance NewsReflections from Cincinnati 2025 and impact of the patient voice
Eszter Hars, Ph.D., President and CEO, SDS AllianceFeb 1SDS Alliance NewsSDS Patient LENS Study Now Open
Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 18SDS Alliance NewsRegister for Community Webinar and Q&A to prep for SDS PFDD Meeting
Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 7SDS Learning ResourcesAmazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 8, 2024SDS Learning ResourcesSDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 24, 2024SDS Learning ResourcesInsights from the ESH Translational Research for IBMF Conference and the French Neutropenia Registry Day. SDS & Science Snapshots (2024-11-23)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 16, 2024SDS Learning ResourcesSDS & Science Snapshots (2024-11-16)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 9, 2024SDS Learning ResourcesSDS and Diabetes: SDS & Science Snapshots (2024-11-09)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 3, 2024SDS Learning ResourcesSDS & Science Snapshots (2024-11-02)
Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 2, 2024SDS Alliance NewsAnnouncing the Winners of the 2024 Million Steps Closer to #CureSDS Challenge
Eszter Hars, Ph.D., President and CEO, SDS AllianceNov 2, 2024SDS Alliance NewsCelebrating Inaugural Global SDS Awareness Day and Action Week: November 1-7
Eszter Hars, Ph.D., President and CEO, SDS AllianceOct 12, 2024SDS Learning ResourcesSDS Alliance shares ideas at new FDA Rare Disease Innovation Hub kick-off Meeting. SDS & Science Snapshots (2024-10-26)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAOct 12, 2024SDS Learning ResourcesSDS & Science Snapshots (2024-10-12)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSAOct 5, 2024SDS Learning ResourcesSDS & Science Snapshots (2024-10-05)
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSASep 28, 2024SDS Learning ResourcesSDS & Science Snapshots (2024-09-28)
