-Aug 6SDS Alliance NewsNew Resources for School Success with Shwachman-Diamond Syndrome — and How You Can Help Build More
-Jun 4SDS SpotlightOne Year Later: The SDS PFDD Voice of the Patient Report Is Published — and Your Voice Is Already at Work
-May 30SDS Alliance NewsHow to Fundraise for Shwachman-Diamond Syndrome Research: A Free Guide for Families and Supporters
-May 7SDS SpotlightSDS Alliance Receives Grant from RTW Foundation to Advance Prime Editing Gene Therapy for Shwachman-Diamond Syndrome
-Apr 28SDS Alliance NewsYour Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS
-Jan 9SDS Alliance News2025 Impact Report: How the SDS Community Is Advancing Research Toward Therapies
-Nov 8, 2025SDS Alliance NewsIntroducing Monthly Giving Allies: How Small Monthly Gifts Help Accelerate SDS Research and #CureSDS
-Nov 3, 2025SDS Learning ResourcesUnderstanding Your Genetic Testing Report: Key Elements for the Shwachman-Diamond Syndrome (SDS) Community and Why it Matters
-Jul 27, 2025SDS Alliance NewsSDS Alliance awarded PCORI Engagement Award funding to build capacity for patient-centered CER for Shwachman-Diamond Syndrome.
-Jul 16, 2025SDS Alliance NewsFDA provides positive feedback on the SDS EL-PFDD meeting, valuing the Patient Voice
-Jan 7, 2025SDS Learning ResourcesAmazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
-Dec 8, 2024SDS Learning ResourcesSDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08
