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Project PACER
Coming Soon!

Project PACER logo referencing patient centricity by including patients and families in the graphics. Building Capactiy for Patient-cenetered Comparative Effectiveness Research (CER) in Shwachman-Diamond Syndrome SDS.

Project PACER

Building Capacity for Patient-Centered Comparative Effectiveness Research (CER) in Shwachman-Diamond Syndrome.

Details coming soon! Stay tuned.

Ways to participate

... and earn a FREE T-shirt ...

Project Overview

What this project is about...​

Sign Up (coming soon)
A woman filling our the SDS-GPS survey on a tablet device. Shwachman-Diamond Syndrome Global Patient Survey and Partnering Program

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Be part of the biggest and most impactful patient voice meeting ever: SDS PFDD 

In-person OR virtual.

Your voice matters. Join the meeting and be part of the Voice of the Patient Report for a long-lasting impact.

 

​NEW: Register by March 15th and earn a FREE T-shirt!

SDS PFDD or EL-PFDD Meeting for Shwachman-Diamond Syndrome social media graphic with magnifying slass focused on a family
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