Fundraise to #CureSDS

For rare and ultra-rare diseases, not only are patients scarce but so is funding. Research and research infrastructure critically depend on funding from the patient community to jumpstart new projects and fill in gaps left by governmental and other funding sources. Funding also helps us make our voices heard in terms of what kinds of research and therapies we want to prioritize, and to be able to capture and make our voices heard effectively.

Would you like to play an active role in accelerating research for effective treatments and a cure?

Every dollar makes a difference in the fight to find ways to eliminate the leukemia risk and a cure Shwachman-Diamond Syndrome. No matter how you do it, your fundraising is an essential part of this mission. There is no right or wrong way to fundraise. People have done some pretty amazing and creative things to raise money. Big or small, in person or online. Follow these three basic steps:

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        Make the decision to help 

 

You’ve made the big decision. Now decide what kind of fundraiser suits your talents, interests, and ambition. Is that online or in person? See some ideas below.

        Create your fundraiser

Getting started for an online campaign only takes a few clicks. Creating in-person fundraiser takes some organization and planning.

        Tell your friends and family

 

You are doing something amazing, and your friends and family will want to help you succeed. Make sure to ask them for support.

Ideas

Holidays 2020: Add a Holiday Appeal to your card this year

We will help you create a personalized appeal letter that will speak to your family and friends. You can add it to your annual holiday mailing, or we can print and mail it on your behalf. Contact us at connect@sdsalliance.org, and we will work with you to make it a easy as possible.

When it is safe again, host an In-Person Event

Lemonade stand, golf tournament, fundraising gala at your favorite restaurant, a 5K. The possibilities are endless.

Start an Online Fundraiser, today

Especially since in-person events are not possible right now, the options for online fundraisers have exploded. The most-popular method is a peer-to-peer campaign via a Facebook fundraiser or a crowdfunding campaign through our Fundraising platform (through GiveLively).

Join an existing Online Fundraiser

Check the "Current Fundraisers" section below and join to lend your support. Often, there will be a simple way to create your own fundraising page as part of that campaign. Contact us if you have any questions.

Find a current Facebook fundraiser to join. 

Pledge your Birthday

Make it your most memorable and meaningful birthday yet. Instead of gifts, ask for donations on your birthday. And we make it easy. The options include a Facebook fundraiser (and some tips) or a crowdfunding campaign through our Fundraising platform (through GiveLively).

Current Fundraisers

Past Fundraisers

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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