Awareness Tools

Would you like to help raise awareness and funding for Shwachman-Diamond Syndrome? You have come to the right place! 

Raising awareness helps save lives. 

  • Awareness in the general public increases the chances that patient families will consider pursuing a diagnosis sooner, and therefore benefit from better medical care 

  • Awareness in the medical community helps providers consider an SDS diagnosis sooner, and allow them to provide better medical care

  • Awareness in the research community can attract more research projects and collaborations, accelerating treatment development 

Raising funds helps support our critical programs needed to enable and accelerate research.

Rare Disease Day
Short videos to share
Flyers and brochures for the public
What is SDS screenshot.PNG
Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:


Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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