SDS Events - Global

NEW DATE March 2021! 10th International Congress on Shwachman-Diamond Syndrome
Mar 22, 2021, 6:00 AM – Mar 25, 2021, 12:00 PM
Cambridge, UK, Cambridge, UK
This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome.
Share
Fun-Run-Walk October 2020
Oct 24, 7:00 AM EDT – Nov 01, 11:00 PM EST
Virtual run/walk, location of your choice
It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
Share
Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
Jul 12, 2:00 PM EDT – Jul 16, 10:00 AM EDT
Camp Sunshine, Cosco, ME, USA, Cosco, ME
SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
Share
Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
Feb 29, 2:00 PM – 5:00 PM EST
Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
Share
SDS Registry Family Day in Boston, MA, US
Sep 15, 2019, 8:00 AM – 4:00 PM EDT
Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
Share
December 2020
Sun
Mon
Tue
Wed
Thu
Fri
Sat
29
30
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
29
30
31
1
2
3
4
5
6
7
8
9
Follow us on Social Media
  • Facebook
  • Twitter
  • LinkedIn
  • YouTube
2020-top-rated-awards-badge-embed.png
Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

© 2020 Shwachman-Diamond Syndrome Alliance |  Terms of Use  |   Privacy Policy