SDS Events - Global

NEW DATE March 2021! 10th International Congress on Shwachman-Diamond Syndrome
Mar 22, 2021, 6:00 AM – Mar 25, 2021, 12:00 PM
Cambridge, UK, Cambridge, UK
This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome.
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Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
Jul 12, 2:00 PM EDT – Jul 16, 10:00 AM EDT
Camp Sunshine, Cosco, ME, USA, Cosco, ME
SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
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Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
Feb 29, 2:00 PM – 5:00 PM EST
Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
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SDS Registry Family Day in Boston, MA, US
Sep 15, 2019, 8:00 AM – 4:00 PM EDT
Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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