SDS Events - Global
- Jun 12, 6:00 AM – Jun 15, 12:00 PMCambridge, UK, Cambridge, UKThis Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed to 2021, and changed to a virtual format.
- Oct 24, 2020, 7:00 AM EDT – Nov 01, 2020, 11:00 PM ESTVirtual run/walk, location of your choiceIt's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
- Jul 12, 2020, 2:00 PM EDT – Jul 16, 2020, 10:00 AM EDTCamp Sunshine, Cosco, ME, USA, Cosco, MESDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
- Feb 29, 2020, 2:00 PM – 5:00 PM ESTPainting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USASDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
- Sep 15, 2019, 8:00 AM – 4:00 PM EDTBoston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
March 2021
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