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SDS Events - Global

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  • POPS: Global Patient Advocacy and Partnering Summit
    POPS: Global Patient Advocacy and Partnering Summit
    Sat, May 20
    Virtual event
    May 20, 10:00 AM – 3:00 PM EDT
    Virtual event
    The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
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  • 10th International Congress on Shwachman-Diamond Syndrome
    10th International Congress on Shwachman-Diamond Syndrome
    Tue, Apr 18
    Robinson College, Cambridge, UK
    Apr 18, 9:00 AM EDT – Apr 21, 1:00 PM EDT
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
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  • 4e journées des neutropénies (4th French National Neutropenia Days)
    4e journées des neutropénies (4th French National Neutropenia Days)
    Fri, Mar 24
    Paris
    Mar 24, 9:00 AM – 4:00 PM GMT+1
    Paris, Paris, France
    Nous vous invitons aux 4e journées des neutropénies qui se tiendront les vendredi 24 et samedi 25 mars prochain.
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  • SickKids Canada - National MFM Virtual Patient and Family Conference
    SickKids Canada - National MFM Virtual Patient and Family Conference
    Sat, Apr 30
    Virtual
    Apr 30, 2022, 12:00 PM – 6:00 PM EDT
    Virtual
    The National Marrow Failure & Myelodysplasia program at SickKids Canada is pleased to invite you to this interactive meeting. It is an ideal opportunity to learn, network with other families and meet experts in the field.
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  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    Sat, Oct 24
    Virtual run/walk, location of your choice
    Oct 24, 2020, 7:00 AM EDT – Nov 01, 2020, 11:00 PM EST
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
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  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Sun, Jul 12
    Camp Sunshine, Cosco, ME, USA
    Jul 12, 2020, 2:00 PM EDT – Jul 16, 2020, 10:00 AM EDT
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
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  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Sat, Feb 29
    Painting with a Twist, North Andover, MA
    Feb 29, 2020, 2:00 PM – 5:00 PM EST
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
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  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    Sun, Sep 15
    Boston, MA
    Sep 15, 2019, 8:00 AM – 4:00 PM EDT
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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