SDS Events - Global

  • NEW DATE April 19-22, 2022! 10th International Congress on Shwachman-Diamond Syndrome
    NEW DATE April 19-22, 2022! 10th International Congress on Shwachman-Diamond Syndrome
    Apr 19, 2022, 9:00 AM – Apr 23, 2022, 1:00 PM
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed to 2022.
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  • Fun-Run-Walk October 2020
    Fun-Run-Walk October 2020
    Oct 24, 2020, 7:00 AM EDT – Nov 01, 2020, 11:00 PM EST
    Virtual run/walk, location of your choice
    It's finally here: the first ever virtual global fun run/walk event to support Shwachman-Diamond Syndrome (SDS) research! www.SDSAlliance.org/steps
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  • Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Postponed. New Date TBD. SDSF Family Conference at Camp Sunshine (ME, USA)
    Jul 12, 2020, 2:00 PM EDT – Jul 16, 2020, 10:00 AM EDT
    Camp Sunshine, Cosco, ME, USA, Cosco, ME
    SDSF (SDS Foundation) hosts a 6-day session at Camp Sunshine every other summer for SDS families to meet with each other and meet and learn from the top SDS experts in North America.
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  • Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Paint with us! Rare Disease Day Fundraiser for SDS, Metro Boston
    Feb 29, 2020, 2:00 PM – 5:00 PM EST
    Painting with a Twist, North Andover, MA, 10 High St, North Andover, MA 01845, USA
    SDS Alliance partnered with Painting with a Twist in North Andover to host a painting event as a fundraiser.
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  • SDS Registry Family Day in Boston, MA, US
    SDS Registry Family Day in Boston, MA, US
    Sep 15, 2019, 8:00 AM – 4:00 PM EDT
    Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155
    Celebrating the SDS Registry's 10th anniversary! Please join us for a complimentary day of education, connection, and fun! - Hear updates from the SDS Registry - Learn about exciting research - Discover cutting-edge clinical trials for SDS - Connect with other SDS families
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