RARE DISEASE DAY
29 FEBRUARY 2024
29 February 2024 will be the 17th international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organizations from countries and regions all over the world will hold awareness-raising activities.
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policymakers, public authorities, industry representatives, researchers, health professionals, and anyone who has a genuine interest in rare diseases.
Watch and share our 2020 Rare Disease Day video, highlighting SDS!
Rare Disease & SDS Infographic to share on social media!
Available in English and Spanish, with French coming soon. Let us know if you would like to help with additional languages! To download, right-click on the image and click save.
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Rare Disease Day events to attend virtually (or watch later)
US
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Broad Institute of MIT and Harvard: Rare Disease Day 2024: Climbing Ladders to Cures in Rare Disease Research
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National Institutes of Health (NIH): Rare Disease Day Event
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US Food and Drug Administration (FDA): FDA's Rare Disease Day 2024—Dedicated to Patients and Providers
Official Rare Disease Day info packs
Click on the icons to download the rare disease day info packs.
2020
2022
