Sun, Sep 15 | Boston, MA

SDS Registry Family Day in Boston, MA, US

Registration is Closed

Time & Location

Sep 15, 2019, 8:00 AM – 4:00 PM EDT
Boston, MA, Harvard Medical School Joseph B Martin Center 77 Avenue Louis Pasteur NRB 133 Boston, MA 02155

About the Event

Registration is now closed. Hope to see many of you!

https://www.eventbrite.com/e/sds-family-day-2019-registration-60522599725?aff=affiliate1 

Celebrating the SDS Registry's 10th anniversary!

About this Event

Please join us for a complimentary day of education, connection, and fun!

- Hear updates from the SDS Registry

- Learn about exciting research

- Discover cutting-edge clinical trials for SDS

- Connect with other SDS families

Please individually register each family member attending this event by August 4th 2019 so we can plan for childcare and meals.

*Children's events will be available on-site*

 

Draft Event Program listed below.

8:30 AM – 9:30 AM – Registration & breakfast

9:30 AM – Welcome

10:00 AM – 11:45 AM – SDS Registry: Update, Talks and Discussion

11:45 AM – 12:45 PM - Lunch

12:45 PM – 3:00 PM – Talks and Discussion

3:00 PM – 3:15 PM – Break

3:15 PM – 5:00 PM – Family Event

Topics for presentation will include:

• Medical complications in children and adults

• Updates about bone Marrow transplant

• Gastrointestinal issues

• Strategies for leukemia surveillance

• Treatment of MDS and AML

• Gene therapy for SDS

• Living with SDS

Registration is Closed
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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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