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Guides and Reports

Click to read, open, or download. If you need a hard copy, email us at connnect@sdsalliance.org to ask.

Free download

School Success with SDS

A Guide for Students, Families, and School Teams

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Front cover of free guide: School Success with Shwachman-Diamond Syndrome, a guide for patients, families, and school teams

Free download

Fundraise Your Way to #CureSDS

A Guide for Patients, Families, and the whole SDS community

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Front cover of free guide: Fundraise your way to #CureSDS, a guide for patients, families, and the whole Shwachman-Diamond Syndrome Community

Free download

Voice for the Patient Report

The official report from the Externally-led patient Focused Drug Development Meeting held June 4th, 2025

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Front cover of free report: Voice of the Patient report for Shwachman-Diamond Syndrome
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