SDS & Rare Disease: short video overview.

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Upcoming Events

Fun-Run-Walk October 2020
Virtual run/walk, location of your choice
NEW DATE March 2021! 10th International Congress on Shwachman-Diamond Syndrome
Cambridge, UK

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Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:


Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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