Together, we can!

Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research.  Our mission is to replicate the success for SDS.  Will you join us?

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100% of your
donation goes to
SDS research.

Your donation will be used exclusively for SDS research.  Our management team is not taking any salary; all operating costs are covered by a separate account, supported by donors whom we approach privately.

SDS and
Rare Disease

What is
Shwachman-Diamond
Syndrome?

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Latest SDS News and Stories

Upcoming Events

  • NEW DATE April 19-22, 2022! 10th International Congress on Shwachman-Diamond Syndrome
    NEW DATE April 19-22, 2022! 10th International Congress on Shwachman-Diamond Syndrome
    Robinson College, Cambridge, UK
    Apr 19, 2022, 9:00 AM – Apr 23, 2022, 1:00 PM
    Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed to 2022.