Shwachman-Diamond Syndrome Alliance - SDS Alliance Foundation

Celebrating CZI Rare As One Award!

Breaking News: ICD-10 Code for SDS

Together, we can!

Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research. Our mission is to replicate the success for SDS. Will you join us?

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100% of your
donation goes to
SDS research.

Your donation will be used exclusively for SDS research. All our operating costs are covered by a separate account, supported by grants and donors whom we approach privately.

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SDS and
Rare Disease

What is
Shwachman-Diamond
Syndrome?

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Latest SDS Patient Stories

2023 Annual Global Virtual Fundraiser - 4 Million Steps Closer to #CureSDS - Huge Success

This October, we conducted the 4th annual global virtual fundraiser to support SDS research. The theme this year was 4 MILLION STEPS...

2022 Annual Global Virtual Fundraiser - Three Million Steps Closer to #CureSDS - Huge Success Again

This October, we conducted the third annual global virtual fundraiser to support SDS research. The theme this year was THREE MILLION...

Ángel Leonardo's SDS Story from Mexico [Spanish and English]

"My parents taught me that apart from receiving help, I must also help. I have a big heart and I am a teacher of life for my family, a...

SDS Alliance Featured News

Osmosis Video on Shwachman-Diamond Syndrome Receives over 4K Views within a Month of Publication

Huge SDS advocacy and awareness win: Osmosis video on Shwachman-Diamond Syndrome receives thousands of views, with millions more to follow

2023 Annual Global Virtual Fundraiser - 4 Million Steps Closer to #CureSDS - Huge Success

This October, we conducted the 4th annual global virtual fundraiser to support SDS research. The theme this year was 4 MILLION STEPS...

SDS Community Represented at the Chan Zuckerberg Initiative's Science and Society Meeting

This September, we took to opportunity to introduce the Shwachman-Diamond Syndrome community at the Chan Zuckerberg Initiative (CZI)...

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Event Highlights

Sat, May 20
POPS: Global Patient Advocacy and Partnering Summit
Virtual event
Details
The first global, virtual, meeting of its kind to provide patients, caregivers, scientist, physicians, and all other stakeholders access to the latest information on all things Shwachman-Diamond Syndrome.
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Tue, Apr 18
10th International Congress on Shwachman-Diamond Syndrome
Robinson College, Cambridge, UK
Details
This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!
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