Shwachman-Diamond Syndrome Alliance - SDS Alliance Foundation

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Celebrating CZI Rare As One Award!

Breaking News: ICD-10 Code for SDS

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Together, we can!

Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research. Our mission is to replicate the success for SDS. Will you join us?

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100% of your
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SDS research.

Your donation will be used exclusively for SDS research. All our operating costs are covered by a separate account, supported by grants and donors whom we approach privately.

SDS and
Rare Disease

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Shwachman-Diamond
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Latest SDS Patient Stories

2022 Annual Global Virtual Fundraiser - Three Million Steps Closer to #CureSDS - Huge Success Again

2022 Annual Global Virtual Fundraiser - Three Million Steps Closer to #CureSDS - Huge Success Again

This October, we conducted the third annual global virtual fundraiser to support SDS research. The theme this year was THREE MILLION...

Ángel Leonardo's SDS Story from Mexico [Spanish and English]

Ángel Leonardo's SDS Story from Mexico [Spanish and English]

"My parents taught me that apart from receiving help, I must also help. I have a big heart and I am a teacher of life for my family, a...

A Blast from the Past: Cresta's SDS Story from the US

A Blast from the Past: Cresta's SDS Story from the US

"I look forward to many more years and to support research to aid SDS patients in the fight against leukemia and Myelodysplastic...

SDS Alliance Featured News

Shwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and Therapies

Shwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and Therapies

Shwachman-Diamond Syndrome receives new ICD-10 Diagnostic Code, Paving the Way For Improved Patient Care and New Treatment Options. Code...

SDS & Science Snapshots (2023-01-14)

SDS & Science Snapshots (2023-01-14)

In this issue: Comprehensive review article on bone marrow surveillance of SDS patients by Drs. Shimamura and Reilly; and a recap of ASH...

SDS Cell Biobank Pilot Project a success!

SDS Cell Biobank Pilot Project a success!

After the successful launch of the mouse model project last year and advancing it to phase two this year, we have expanded our efforts to...

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