Shwachman-Diamond Syndrome Alliance - SDS Alliance Foundation

Celebrating CZI Rare As One Award!

Together, we can!

Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research. Our mission is to replicate the success for SDS. Will you join us?

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100% of your
donation goes to
SDS research.

Your donation will be used exclusively for SDS research. All our operating costs are covered by a separate account, supported by grants and donors whom we approach privately.

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SDS and
Rare Disease

What is
Shwachman-Diamond
Syndrome?

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Latest SDS Patient Stories

2022 Annual Global Virtual Fundraiser - Three Million Steps Closer to #CureSDS - Huge Success Again

This October, we conducted the third annual global virtual fundraiser to support SDS research. The theme this year was THREE MILLION...

Ángel Leonardo's SDS Story from Mexico [Spanish and English]

"My parents taught me that apart from receiving help, I must also help. I have a big heart and I am a teacher of life for my family, a...

A Blast from the Past: Cresta's SDS Story from the US

"I look forward to many more years and to support research to aid SDS patients in the fight against leukemia and Myelodysplastic...

SDS Alliance Featured News

SDS & Science Snapshots (2023-01-14)

In this issue: Comprehensive review article on bone marrow surveillance of SDS patients by Drs. Shimamura and Reilly; and a recap of ASH...

SDS Cell Biobank Pilot Project a success!

After the successful launch of the mouse model project last year and advancing it to phase two this year, we have expanded our efforts to...

SDS Alliance Meets with the FDA

Dr. Eszter Hars (SDS Alliance president and CEO) joined the FDA CBER OTAT Patient-Focused Drug Development Listening Meeting.

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Upcoming Events

Tue 18 Apr
10th International Congress on Shwachman-Diamond Syndrome
Robinson College, Cambridge, UK
Register Now
Apr 18, 9:00 AM EDT – Apr 21, 1:00 PM EDT
Robinson College, Cambridge, UK, Grange Rd, Cambridge CB3 9AN, UK
This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed several times. Now scheduled for April 18-21, 2023!

More Events

Celebrating CZI Rare As One Award!

Together, we can!

100% of your
donation goes to
SDS research.

SDS and
Rare Disease

What is
Shwachman-Diamond
Syndrome?

Latest SDS Patient Stories

SDS Alliance Featured News

Upcoming Events

Shwachman-Diamond Syndrome Alliance Inc.

Partners

Celebrating CZI Rare As One Award!

Together, we can!

100% of your donation goes to SDS research.

SDS and Rare Disease

What is Shwachman-Diamond Syndrome?

Latest SDS Patient Stories

SDS Alliance Featured News

Upcoming Events

Shwachman-Diamond Syndrome Alliance Inc.

Partners

100% of your
donation goes to
SDS research.

SDS and
Rare Disease

What is
Shwachman-Diamond
Syndrome?