

A Cure for SDS
Imagine a world where SDS could just go away, life could be back to normal, and we could live without the fear that another shoe is going to drop…
Why isn't it available?
Developing a therapy is a complicated process. The current system that funds medical research does not work well for rare diseases, but there are success stories.

Together, we can make it happen!
Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research. Our mission is to replicate the success for SDS. Will you join us?
100% of your donation
goes to SDS research.
Your donation will be used exclusively for SDS research. Our management team is not taking any salary; all operating costs are covered by a separate account, supported by donors whom we approach privately.
Upcoming Events
- 22MonMarNEW DATE March 2021! 10th International Congress on Shwachman-Diamond Syndrome/Cambridge, UK