Together, we can!

Every successful therapy is a result of a tried-and-true strategy: support researchers, recruit specific expertise, and coordinate research.  Our mission is to replicate the success for SDS.  Will you join us?

100% of your
donation goes to
SDS research.

Your donation will be used exclusively for SDS research.  Our management team is not taking any salary; all operating costs are covered by a separate account, supported by donors whom we approach privately.

SDS and
Rare Disease

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Upcoming Events

  • NEW DATE (virtual) June 2021! 10th International Congress on Shwachman-Diamond Syndrome
    Cambridge, UK
    Jun 12, 6:00 AM – Jun 15, 12:00 PM
    Cambridge, UK, Cambridge, UK
    This Congress is held every other year in different locations throughout Europe and North America. It is the only scientific congress dedicated to Shwachman-Diamond Syndrome. Due to the global Covid-19 pandemic, the event was postponed to 2021, and changed to a virtual format.