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100 VOICES to #CureSDS
Share your story to make a difference!

Share your story. Make an impact. Make it count.

Be part of this global movement to show strength in numbers. Show researchers and regulators that we are ready for therapies and cures for SDS. 

Child with magehone and superhero cape, wearing the 100 Voices to #CureSDS campaign shirt for Shwachman-Diamond Syndrome

How YOU can make a difference:

... and earn a FREE T-shirt (like above) along the way...

Be part of the first 100 participants in SDS-GPS

Power the impact of the Patient Voice in research. Make your voice count.

NEW: Join by March 15th and earn a FREE T-shirt!

A woman filling our the SDS-GPS survey on a tablet device. Shwachman-Diamond Syndrome Global Patient Survey and Partnering Program

&

Be part of the biggest and most impactful patient voice meeting ever: SDS PFDD 

In-person OR virtual.

Your voice matters. Join the meeting and be part of the Voice of the Patient Report for a long-lasting impact.

 

NEW: Register by March 15th and earn a FREE T-shirt!

SDS PFDD or EL-PFDD Meeting for Shwachman-Diamond Syndrome social media graphic with magnifying slass focused on a family
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