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All Blogs & News


Elijah (age 25)
In Loving Memory Elijah grew up not knowing about SDS. Neither did his family. He developed health issues around age 23 including MDS....


SDS Alliance Meets with the FDA
Dr. Eszter Hars (SDS Alliance president and CEO) joined the FDA CBER OTAT Patient-Focused Drug Development Listening Meeting.


SDS Alliance meets with the White House Cancer Moonshot Team
September 30th is Rare Cancer Day. We marked the day by taking action and meeting with the White House Cancer Moonshot initiative in...
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