Eszter Hars, Ph.D., President and CEO, SDS Alliance6 days agoSDS Science SnapshotsSDS & Science Snapshots (2024-04-20)In this issue: SDS Alliance highlights the patient voice at the international INNOCHRON meeting in Greece! Welcome to our timely updates...
Eszter Hars, Ph.D., President and CEO, SDS AllianceFeb 11SDS Patient Stories and NewsHow Elijah inspired Hero Kids in the Making - an SDS Story from the USI wanted my son to see himself as a brave hero overcoming his reasonable fears associated with the pain and uncharted aspects of his medical
Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 2, 2023SDS Alliance NewsOsmosis Video on Shwachman-Diamond Syndrome Receives over 4K Views within a Month of PublicationHuge SDS advocacy and awareness win: Osmosis video on Shwachman-Diamond Syndrome receives thousands of views, with millions more to follow