Eszter Hars, Ph.D., President and CEO, SDS Alliance3 days agoSDS Science SnapshotsSDS-POPS 2024 Recordings and Resources Now Available! SDS Alliance Blog 2024-12-08In this issue: SDS-POPS 2024 covers a wider range of topics, including SDS patient voice, stories, film, and advocacy, and SDS research and
Eszter Hars, Ph.D., President and CEO, SDS AllianceAug 8, 2023SDS Alliance NewsShwachman-Diamond Syndrome Receives ICD-10 Code, Paving the Way for Improved Care and TherapiesShwachman-Diamond Syndrome receives new ICD-10 Diagnostic Code, Paving the Way For Improved Patient Care and New Treatment Options. Code...
Eszter Hars, Ph.D., President and CEO, SDS AllianceMar 26, 2023SDS Science SnapshotsSDS & Science Snapshots (2023-03-25)In this issue: New proof-of-concept article on RNA Therapeutics and Base/Prime Editing for SDS; And, a review of diagnostic testing for...