A mom from NZ explains how her rock ‘n roll lifestyle was turned upside down by SDS.

Written for The Spinoff magazine (NZ) / By Kiki Van Newtown

In this story, you can learn about this Rock 'n Roll family's journey with SDS in New Zealand. Read the article at its original source on The Spinoff, here.

“...I forgot about life outside the illness. I was no longer a punk rock hooligan. I was the parent of a very sick and fragile child.” writes Kiki.

Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

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