Carter and Skye's Story: A short video for Maddie Riewordt's Vision

Carter and his sister Skye both have Shwachman-Diamond Syndrome (SDS) and went through stem cell transplants, recently. They and their mom Karen are raising awareness about bone marrow failure to support Maddie Riewordt's Vision and bone marrow failure research, in Australia. Thank you Karen, Carter, and Skye!!!

Carter and Skye, Australia


View Carter and Skye's story, here:

https://www.mrv.org.au/page/101/personal-stories

Plus, don't miss out on the Patient & Family Forum 2020 held by Marrie's Vision (Australia): The inaugural Patient & Family Forum will be held on Friday 28 August, 2020. Maddie's Vision has selected a panel of experts to share their knowledge on Bone Marrow Failure Syndromes and invites you to join the audience in this livestreamed virtual event. https://www.mrv.org.au/events/2/patient-family-forum-2020


Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

© 2020 Shwachman-Diamond Syndrome Alliance |  Terms of Use  |   Privacy Policy