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Introducing Ribo & Somi, the RIBOSOME Superheroes

The last day of February is Rare Disease Day, but for us - rare disease families and advocates - every day is rare disease day. But no worries! We just got extra help!

Please meet Ribo & Somi, the ribosome superheroes. They are our new mascots, with the mission to #CureSDS, and teaching the kids in our community about SDS science and advocacy in a fun and approachable way.

They are launching into action with two new resources for kids:

  • The 2022 Coloring Calendar full of information about all things SDS, and

  • a new page on our website dedicated to kid friendly information and resources.

Have fun learning and advocating!

(P.S. new T-shirts and other fun themed items coming soon. Stay tuned.)

New languages and formats for the calendar have been added and can be downloaded from!


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