Get Involved

Our mission is to stop the ticking SDS time bomb; 
and accelerate research and translation into treatments and cures 
Your support is essential. We can't do it alone!
There are many ways you can get involved and help.


  • patients can donate data though registries

  • financial support is critical for getting things done

  • fundraising using your passion and strength

  • raising awareness in the general and medical community

  • providing peer-to-peer support

  • volunteer with us. Everyone has something to offer

Please make a donation, today.


Send to: PO Box 2441, Woburn, MA 01888

Please make checks payable to the 
"SDS Alliance"


Online payment portal coming soon


Link to our Facebook donation page
coming soon!

Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:


Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

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