Get Involved

Our mission is to stop the ticking SDS time bomb; 
and accelerate research and translation into treatments and cures 
 
Your support is essential. We can't do it alone!
There are many ways you can get involved and help.

 

  • patients can donate data though registries

  • financial support is critical for getting things done

  • fundraising using your passion and strength

  • raising awareness in the general and medical community

  • providing peer-to-peer support

  • volunteer with us. Everyone has something to offer

Please make a donation, today.

 
Check

Send to: PO Box 2441, Woburn, MA 01888

Please make checks payable to the 
"SDS Alliance"

Online

Online payment portal coming soon

Facebook

Link to our Facebook donation page
coming soon!

Shwachman-Diamond Syndrome Alliance

To advance treatments and finding a cure for Shwachman-Diamond Syndrome.

Contact us:

Email: connect@SDSAlliance.org

Phone: +1-617-329-1838

Mail: PO Box 2441
          Woburn, MA 01888

Shwachman-Diamond Syndrome Alliance is a US based not-for-profit 501(3)c corporation, serving the global SDS community.

© 2020 Shwachman-Diamond Syndrome Alliance |  Terms of Use  |   Privacy Policy