Eszter Hars, Ph.D., President and CEO, SDS AllianceJun 19, 2020SDS Patient Stories and NewsMax's Story: A short insight as part of the 2020 Jeans for GenesMax and his family are raising awareness for Shwachman-Diamond Syndrome and rare disease by participating again in the 2020 Jeans for Genes
Eszter Hars, Ph.D., President and CEO, SDS AllianceMay 23, 2020SDS Patient Stories and NewsGracie's Story: Finding my voice and insights into my BMTGracie - a young adult SDS patient in the US, shares her story about finding her voice and her bone marrow transplant.
Eszter Hars, Ph.D., President and CEO, SDS AllianceFeb 21, 2020SDS Patient Stories and NewsAbout a mother's relentless quest for a cure for SDSBy Emily Williams / Boston Children's Hospital In this post, you can learn about the passion and efforts of a mother to a young daughter...