Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSADec 16, 2023SDS Science SnapshotsSDS & Science Snapshots (2023-12-16)In this issue: What does it mean to have a clinical diagnosis of SDS and who are some of the important care team members who can help?
Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 9, 2023SDS Science SnapshotsSDS & Science Snapshots (2023-12-09)In this issue: Breaking news! First CRISPR-based therapy approved by the FDA for treatment of a genetic blood disorder - sickle cell...
Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 2, 2023SDS Alliance NewsOsmosis Video on Shwachman-Diamond Syndrome Receives over 4K Views within a Month of PublicationHuge SDS advocacy and awareness win: Osmosis video on Shwachman-Diamond Syndrome receives thousands of views, with millions more to follow