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All Blogs & News
FDA provides positive feedback on the SDS EL-PFDD meeting, valuing the Patient Voice
Externally-Led Patient Focused Drug Development Meeting for Shwachman-Diamond Syndrome (SDS PFDD meeting) successfully delivers patient voice to the FDA, drug developers, and other stakeholder.
Free Genomic Sequencing for SDS through New Collaboration with Rare Genomes Project. SDS & Science Snapshots (2024-07-13)
In this issue: New research genetic testing opportunity for individuals suspected to have SDS!
SDS & Science Snapshots (2024-05-04)
In this issue: A new publication describing the symptoms of SDS in patients in China!
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