top of page
All Blogs & News


Amazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
Be a Speaker/Panelist! The FDA has accepted our request to hold an Externally-Led Patient Focused Drug Development Meeting for SDS on 6/4/25
-
Jan 7, 2025


SDS & Science Snapshots (2024-11-02)
In this issue: The SDS Alliance team is ready for Global SDS Awareness Day and Action Week! A recap of the CZI Science in Society meeting.
-
Nov 3, 2024


SDS & Science Snapshots (2024-08-03)
In this issue: Recently published article reviews emerging research on personalized medicine opportunities for SDS!
-
Aug 4, 2024
bottom of page
