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All Blogs & News


FDA provides positive feedback on the SDS EL-PFDD meeting, valuing the Patient Voice
Externally-Led Patient Focused Drug Development Meeting for Shwachman-Diamond Syndrome (SDS PFDD meeting) successfully delivers patient voice to the FDA, drug developers, and other stakeholder.

Eszter Hars, PhD
Jul 16, 2025


SDS Patient LENS Study Now Open
Apply today. SDS Alliance open a new qualitative research study -- the SDS Patient LENS Study -- to understand the unique lived experiences,

Eszter Hars, PhD
Feb 1, 2025


Register for Community Webinar and Q&A to prep for SDS PFDD Meeting
Join the community webinar and Q&A session to learn all about the EL-PFDD meeting on Shwachman-Diamond Syndrome and get answers about it all

Eszter Hars, PhD
Jan 18, 2025
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