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All Blogs & News


Amazing Opportunity to Share SDS Patient Perspectives with FDA: EL-PFDD Meeting Planned June 4th, 2025
Be a Speaker/Panelist! The FDA has accepted our request to hold an Externally-Led Patient Focused Drug Development Meeting for SDS on 6/4/25
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Jan 7, 2025


SDS & Science Snapshots (2024-09-07)
In this issue: New case report - successful treatment of breast cancer in a patient with SDS!
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Sep 14, 2024


SDS & Science Snapshots (2024-08-03)
In this issue: Recently published article reviews emerging research on personalized medicine opportunities for SDS!
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Aug 4, 2024
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