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All Blogs & News


Reflections from Cincinnati 2025 and impact of the patient voice
Our reflections. Cincinnati hosted two key events for SDS in June 2025: the SDS PFDD meeting and the International Scientific Congress on Shwachman-Diamond Syndrome


Announcing the Winners of the 2024 Million Steps Closer to #CureSDS Challenge
In this issue: The results of the 2024 Million Steps Closer to #CureSDS Challenges are in!


SDS & Science Snapshots (2024-09-07)
In this issue: New case report - successful treatment of breast cancer in a patient with SDS!
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