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All Blogs & News


Octavian's SDS Story: A Rare Gem with EFL1
"We have reached the stage of acceptance and trying to live life the fullest despite SDS" Shares Octavian's dad, Raul. Read this Romanian...
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Jul 7, 2024


SDS & Science Snapshots (2024-05-11)
In this issue: SDS identified as a common cause of inherited neutropenia in the Israeli Inherited Bone Marrow Failure Registry!
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May 11, 2024


SDS & Science Snapshots (2024-05-04)
In this issue: A new publication describing the symptoms of SDS in patients in China!
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May 4, 2024
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