top of page
All Blogs & News
Your Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS
Newly diagnosed with Shwachman-Diamond Syndrome? Learn how SDS-GPS protects your privacy while helping advance research and therapies for SDS.
Eszter Hars, PhD
Apr 28
FDA provides positive feedback on the SDS EL-PFDD meeting, valuing the Patient Voice
Externally-Led Patient Focused Drug Development Meeting for Shwachman-Diamond Syndrome (SDS PFDD meeting) successfully delivers patient voice to the FDA, drug developers, and other stakeholder.
Eszter Hars, PhD
Jul 16, 2025
Reflections from Cincinnati 2025 and impact of the patient voice
Our reflections. Cincinnati hosted two key events for SDS in June 2025: the SDS PFDD meeting and the International Scientific Congress on Shwachman-Diamond Syndrome
Eszter Hars, PhD
Jun 23, 2025
bottom of page