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Octavian's SDS Story 2: A Rare Gem with EFL1, Year Two
One year has passed since we have shared with you all our first year as a family of 4.
In our first chapter we have discussed about our journey from noticing that something might be wrong with our Octavian and the long and intense journey of getting the right diagnosis, finding the right medical center and medical team to provide Octavian the care he needs and concluded with a strong statement of acceptance and a promise to live life the fullest despite SDS.
SDS Community Member
Nov 3
SDS & Science Snapshots (2022-03-20)
In this issue: Report of a new variant in DNAJC21 associated with SDS like symptoms; Plus, new FDA Guidance on Patient-Focused Drug...
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