top of page
All Blogs & News
Project PACER: Building Shwachman-Diamond Syndrome Education Together
Take our 5-minute survey to shape Project PACER - a comprehensive Shwachman-Diamond Syndrome education manual and course. Co-created by patients, caregivers, and medical experts. PCORI-funded initiative.
Eszter Hars, PhD
Mar 5
Ryker's SDS Story and Journey to Bone Marrow Transplant
"Ryker has been such a strong little man throughout these past couple of years with going through so many tests, procedures and doctor...
Eszter Hars, PhD
Apr 23, 2021
bottom of page