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Your Data is Safe: What Newly Diagnosed SDS Families Need to Know About SDS-GPS
Newly diagnosed with Shwachman-Diamond Syndrome? Learn how SDS-GPS protects your privacy while helping advance research and therapies for SDS.
Eszter Hars, PhD
Apr 28
Project PACER: Building Shwachman-Diamond Syndrome Education Together
Take our 5-minute survey to shape Project PACER - a comprehensive Shwachman-Diamond Syndrome education manual and course. Co-created by patients, caregivers, and medical experts. PCORI-funded initiative.
Eszter Hars, PhD
Mar 5
Introducing Monthly Giving Allies: How Small Monthly Gifts Help Accelerate SDS Research and #CureSDS
Learn how the SDS Alliance’s Monthly Giving Allies program helps fund research, support therapy development, and build momentum toward clinical trials for Shwachman-Diamond syndrome (SDS). Even small monthly donations make a meaningful impact.
Eszter Hars, PhD
Nov 8, 2025
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