top of page
All Blogs & News


SDS & Science Snapshots (2023-12-09)
In this issue: Breaking news! First CRISPR-based therapy approved by the FDA for treatment of a genetic blood disorder - sickle cell...


SDS & Science Snapshots (2023-11-25)
In this issue: The importance of knowing your family health history and how to have these delicate and powerful conversations


SDS & Science Snapshots (2023-11-18)
In this issue: New study reports the economic impact of a delayed diagnosis is up to $517,000 in avoidable costs per patient in rare disease
bottom of page


