top of page
All Blogs & News
SDS & Science Snapshots (2022-07-23)
In this issue: What is neutropenia and how does it happen in SDS; Study highlights the multibillion dollar burden of rare disease Welcome...
SDS & Science Snapshots (2022-07-10)
In this issue: CRISPR-Cas9 turns 10; The promise of Gene Therapy for Rare Disease and Shwachman-Diamond Syndrome (SDS) Welcome to our...
SDS & Science Snapshots (2022-07-03)
In this issue: IRDiRC Working Group Recommendations for rare disease patients; The Access to Rare Indications Act could be a game changer...
bottom of page