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Octavian's SDS Story 2: A Rare Gem with EFL1, Year Two
One year has passed since we have shared with you all our first year as a family of 4.
In our first chapter we have discussed about our journey from noticing that something might be wrong with our Octavian and the long and intense journey of getting the right diagnosis, finding the right medical center and medical team to provide Octavian the care he needs and concluded with a strong statement of acceptance and a promise to live life the fullest despite SDS.
SDS Community Member
Nov 3
Elijah (age 25)
In Loving Memory Elijah grew up not knowing about SDS. Neither did his family. He developed health issues around age 23 including MDS....
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