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Healing Henley. An SDS Story told by Henley's mom, Jess
Picture and story about Jess and daughter Henley (who suffers from Shwachman-Diamond Syndrome), preparing for bone marrow transplant.
Carter and Skye's Story: A short video for Maddie Riewordt's Vision
Carter and his sister Skye both have Shwachman-Diamond Syndrome (SDS) and went through stem cell transplants, recently.
Gracie van Brunt – singer, songwriter, and rare disease advocate – shares her story in a podcast.
Gracie van Brunt – singer, songwriter, and rare disease advocate – shares her story in a podcast.
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