Eszter Hars, Ph.D., President and CEO, SDS AllianceJan 31, 2018SDS Patient Stories and NewsAfter Amazon mix-up, man becomes advocate for little boy with Shwachman-Diamond SyndromeIn 2018, a wonderful friendship unfolded as a result of a mishap. Now the SDS family got an extra super advocate as a result. Read the...
Eszter Hars, Ph.D., President and CEO, SDS AllianceOct 3, 2016SDS Patient Stories and NewsA mom from NZ explains how her rock ‘n roll lifestyle was turned upside down by SDS.Written for The Spinoff magazine (NZ) / By Kiki Van Newtown In this story, you can learn about this Rock 'n Roll family's journey with...