Eszter Hars, Ph.D., President and CEO, SDS AllianceDec 2, 2023SDS Alliance NewsOsmosis Video on Shwachman-Diamond Syndrome Receives over 4K Views within a Month of PublicationHuge SDS advocacy and awareness win: Osmosis video on Shwachman-Diamond Syndrome receives thousands of views, with millions more to follow
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 25, 2023SDS Science SnapshotsSDS & Science Snapshots (2023-11-25)In this issue: The importance of knowing your family health history and how to have these delicate and powerful conversations
Ashley Thompson, MS, CGC, Genetics Project Manager @ SDSANov 18, 2023SDS Science SnapshotsSDS & Science Snapshots (2023-11-18)In this issue: New study reports the economic impact of a delayed diagnosis is up to $517,000 in avoidable costs per patient in rare disease