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All Blogs & News


Advocating for SDS Research at Rare Drug Development Symposium
This week, I had the great honor to present at the 2021 Rare Drug Development Symposium, hosted by Global Genes and the UPenn ODC.


The SDS Alliance Launches Mouse Model Project with The Jackson Laboratory
SDS Alliance has just launched a project with The Jackson Laboratory to develop an SDS mouse model—the key first step toward a cure for SDS.


Whitner's SDS Story and Journey to Bone Marrow Transplant
"My journey to diagnosis has been nothing short of an adventure, filled with many obstacles, hundreds of specialists, and much...
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